Chad

Today we honour Chad

On Dec. 4th, 2025, my husband started to not feel well. For a month he had non-stop fevers and was in and out of urgent care. On December 30th, he was admitted to the hospital. Within a few days he was diagnosed with HLH and eventually diagnosed with primary HLH. The doctors were constantly telling us his case is so rare and they couldn’t explain how he made it to 45 before the generic HLH presented itself. For part of his battle, the HLH was in his CSF and was affecting his brain. Chad went through extensive testing, procedures, and transfusions daily. He started with chemo and was on the highest dose steroids, Gamifant, Jakafi, Anakinra but the HLH continued to take over his body. Chad was scheduled for a bone marrow transplant, as they had found a match for him, but unfortunately, he was too sick to start the process. The HLH had taken over his bone marrow and completely depleted his platelets and the medicine to cure the HLH destroyed his immune system. He passed on April 14th, 2026 two weeks before his transplant date.

He was only 45 years old with a wife and 3 young kids who adored him