Meet The Board
Jessica is a Licensed Clinical Social Worker that is originally from Iowa. Jessica went to school at the University of Northern Iowa and received her Masters at the University of Michigan. Jessica is the mom of 3 boys. Will (age 4), Jack, and Baby Hrevus- due summer 2022. Jack or “Jack-Jack” was diagnosed with HLH at 3 months of age in October 2020 and died in March 2021 due to adenovirus in his lungs post transplant. Jessica and Jake (her husband) talked many times in the hospital about having a “one stop shop” for families and individuals with HLH to get the support they needed after receiving a diagnosis. HLHHF hopes to be that place for this community.
Courtney is a wife, mother and a full time working mom as a purchasing buyer at a hospital. Courtney has two boys one who's name is Riley which he is a carrier of the HLH gene and Myles which is her HLH warrior that fought for 4 months in his battle of HLH and gained his wings in Oct 2020. Courtney and her husband Brandon joined in to be one of the founders of HLH Heroes Foundation it is their passion to share Myles story and be there for other families that are on the hard journey of treatment of HLH.
Carrie is an elementary school gifted support teacher and full time mom to two beautiful kids, one of which is a primary HLH survivor. Carrie's son, CJ, was diagnosed at 3 months old in December of 2020 and is now enjoying the opportunity to explore the world after enduring a long treatment journey, including a bone marrow transplant at 5 months old. Carrie helped form the HLH Heroes Foundation with a passion for bringing those affected by an HLH diagnosis together and giving them hope for the future.
Jake lives in St. Louis, MO with his beautiful wife, Jessica and son Will (4). He graduated from the University of Missouri with a Bachelor’s of Science in Education. He enjoys supporting the various activities of his son whether it’s coaching or being a spectator on the sidelines. He is the proud father of Jack who passed away from HLH in March of 2021. His love for Jack and desire to help individuals and families impacted by HLH is what drives his involvement with HLHHF.
Molly works full time at Worldwide Technology in St. Louis, MO. She has 3 children: Henry, Lilly (3) and Dominic (1). Henry is her reason for being involved with HLH Heroes Foundation. He was diagnosed with Primary HLH at 4 months old and unfortunately passed away after 6 long weeks of fighting in the hospital (a day before he would turn 6 months). Molly's passion for this foundation is help other families not feel alone and support them in their times of need.
Cassandra is the mother to two amazing little girls, Ameliah and Alivia. Alivia was misdiagnosed for 3 months and finally at 8 months old confirmed by bone marrow biopsy results to have Primary HLH syndrome. She advocated for Alivia's treatment to be transferred to Cincinnati Children’s and never looked back! Cassandra is so honored to be a part of this foundation and give back in ways she wishes existed when her family went through the long, hard and exhausting days of treatment.
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As a new foundation, we are looking for people who are willing to volunteer their time to help us build programs and events that will positively impact the HLH community. If you are interested in supporting us, please complete the form below.