Volunteer Job
Opportunities

Location: Remote 
Time Commitment: 2-3 hours per month for at least 1 year.

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Role Overview

The Caring Companion Coordinator serves as the primary link between families navigating a new diagnosis and our network of dedicated volunteers for our Caring Companion program. This role ensures that no family walks their journey alone by facilitating timely, thoughtful, and organized connections with a Caring Companion.

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Responsibilities

• Family Outreach: Initiate contact with newly diagnosed families via email, providing them with the necessary intake forms to understand their specific needs.

• Workflow Monitoring: Track the status of pending forms and ensure families have the support they need to complete the onboarding process.

• Volunteer Matching: Review family profiles and strategically reach out to the volunteer pool to facilitate a meaningful connection.

• Record Keeping: Maintain an accurate, up-to-date database of family-volunteer pairings to ensure no one falls through the cracks.

• Follow-up & Support: Regularly check in with volunteers to confirm contact has been established and monitor the ongoing health of the connection.

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Qualifications & Skills

• Strong Communication: Ability to communicate with warmth, clarity, and professionalism via email and phone.

• Organizational Excellence: High attention to detail with the ability to manage multiple moving parts and "close the loop" on tasks.

• Technical Proficiency: Comfortable using email platforms, digital forms, and basic database or spreadsheet management (e.g., Excel, Google Sheets, or CRM tools).

• Empathy & Discretion: Ability to handle sensitive family information with the utmost confidentiality and compassion.

Location: Remote

Time Commitment: 2-3 hours per month for at least 1 year.

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Role Overview:

We are looking for a creative and motivated Marketing and Social Media Coordinator to help amplify our mission and engage our community. This volunteer position is essential for developing and executing marketing strategies that raise awareness about our work supporting families impacted by a rare disease.

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Responsibilities:

• Social Media Management: Create, schedule, and post engaging content across various platforms (Facebook, Instagram, etc.) to increase awareness and engagement.

• Content Creation: Develop compelling graphics, videos, and written content that highlights our programs, events, and success stories.

• Campaign Development: Plan and execute targeted marketing campaigns to promote fundraising events, awareness initiatives, and community engagement activities.

• Community Engagement: Interact with followers, respond to inquiries, and foster a sense of community online.

• Analytics and Reporting: Monitor social media metrics and website analytics to evaluate the effectiveness of marketing strategies and provide insights for improvement.

• Collaboration: Work closely with other team members to align marketing efforts with organizational goals and initiatives.

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Qualifications:

• Experience: Previous experience in marketing, social media management, or communications, preferably in a non-profit context.

• Creative Skills: Strong writing, graphic design, and content creation skills; familiarity with design tools (e.g., Canva) is a plus.

• Tech Savvy: Proficiency in using social media platforms and tools, as well as basic knowledge of website management (e.g., Wix).

• Communication Skills: Excellent interpersonal and communication skills, with the ability to engage diverse audiences.

• Passion for the Mission: A genuine commitment to supporting families affected by rare diseases and raising awareness in the community.